I am 26 years old. In 2008 I was diagnosed with Ehlers Danlos Syndrome, which is a Connective Tissue Disorder. I also possibly have an underlying Blood Clotting Disorder known as MTHFR Gene Mutation. These conditions are the underlying cause of all my medical conditions. This is just a very small portion of my journey. Please check out my whole story in Introduction
To primarily my Chiari family, please join my site and make a members profile, use the Forums and interact with others.
Unfortunately due to vast amounts of spam in my guestobook or comment boxes I had to shunt down my blog - I now use this site strictly for information use. I do my journal updates on my Caringbridge. Please register on my Caringbridge by filling out a quick form (this is done to avoid spam) and sign the guestbook if you stop by! :) Thanks!